Author: Melanie Putnam

Hi, my name is Melanie. Thanks for checking out my blog! I have two amazing kids and the best husband anyone could be lucky enough to have. To put it simply, I have been through a lot. I was diagnosed with lymphangioleiomyomatosis (LAM) when I was pregnant with my youngest. I talk about what the disease is here: What is LAM? Essentially, it is an incurable lung disease that took away my breath literally and put me on death's doorstep by the time I was 28. I was very fortunate to receive a lung transplant and get a new shot at life. I talk about what a lung transplant involves here: What is a Lung Transplant? I have utilized this blog to share my story of a very rare lung disease and give hope to other women who struggle with it as well. I also hope to show that through all of the difficulties that life has thrown my way, it is a CHOICE to live every day as if it is my last. It very well could be, so I will never let a day go by where I do not appreciate and love all of the blessings that God has given me in this life. Starting with the extra time that this double lung transplant has given me.

2 weeks left!

Well, I have been off of the drug for over a month now.  WOOOOOOOOOOW, am I feeling it!  It is very difficult for me right now.  I am feeling short of breath all the time, and breathing is something that I think about ALL day long...EVERY day.  Even moreso than before, and I didn't think... Continue Reading →

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Only 4 weeks to go!!

I have 4 weeks left to go until I can get officially on the lung transplant list!!  I can't wait!  All of the rest of my testing came back good, so I have nothing standing in my way.  I have been off of my medication (sirolimus) for about 3 weeks now, and everything else is... Continue Reading →

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More testing…

Hey everyone! Well, the last week has been a rough one, but I have made it through.  🙂  Starting things off, I had the flu for 3 days, got better the next day, and then got a horrible cold and lost my voice.  Moving right along...Tuesday and Wednesday were spent in Iowa City doing lung... Continue Reading →

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Update on clinical trial

Wow, I am just realizing that I really haven’t written on my blog in a while!!  Guess I have been busy!! I went to Cincinnati this week for my lung appointment.  I did my lung tests and met with my doctor, and unfortunately, my lung function did decrease further from the last time I went. ... Continue Reading →

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