Update on clinical trial

Wow, I am just realizing that I really haven’t written on my blog in a while!!  Guess I have been busy!! I went to Cincinnati this week for my lung appointment.  I did my lung tests and met with my doctor, and unfortunately, my lung function did decrease further from the last time I went. ... Continue Reading →

Cincinnati Lung Appointment

Hi everyone! Well, I just got home late last night from my appointment in Cincinnati this past week.  I have been there since Wednesday.   I have really been struggling in the past 2 months with my lung function.  I have been much more short of breath with every little movement in every area in the... Continue Reading →

I love Fall/My next trip to Cincinnati

Fall is such a great time for me.  It is so much easier to breathe in nice, crisp Fall weather.  That is the first thing.  The second thing is that I absolutely LOVE the Fall Season b/c of what comes right after...THE HOLIDAYS!!!  Jay and I have been talking about Thanksgiving and Christmas for months... Continue Reading →

2nd day in Cincinatti…oh, boy…

"Melanie, I cannot understand the rapid progression that your lungs have taken in the past 3 months, or the past year.  If you continue at this rate of progression before your next appointment in 3 months, you will be staring a double lung transplant in the face." So, those are the words that I heard... Continue Reading →

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