I have to say that I am kind of sad right now that it is over! I have spent the past year with the amazing clinical staff in Cincinnati Ohio, and as of yesterday, my clinical trial is over. 😦 They have been so good to me, and have extended so much love and kindness... Continue Reading →
Update on clinical trial
Wow, I am just realizing that I really haven’t written on my blog in a while!! Guess I have been busy!! I went to Cincinnati this week for my lung appointment. I did my lung tests and met with my doctor, and unfortunately, my lung function did decrease further from the last time I went. ... Continue Reading →
Cincinnati Lung Appointment
Hi everyone! Well, I just got home late last night from my appointment in Cincinnati this past week. I have been there since Wednesday. I have really been struggling in the past 2 months with my lung function. I have been much more short of breath with every little movement in every area in the... Continue Reading →
My Weekend / Visit with the doctor in Cincinnati
My trip to Cincinnati for ONCE was good news. After 2 years of BAD news, we finally got some good news. We started our trip by going on Friday night to Six Flags Great America with two of our best friends, the Kelleys and the Nichols. We took the kids and went to Great America... Continue Reading →
I love Fall/My next trip to Cincinnati
Fall is such a great time for me. It is so much easier to breathe in nice, crisp Fall weather. That is the first thing. The second thing is that I absolutely LOVE the Fall Season b/c of what comes right after...THE HOLIDAYS!!! Jay and I have been talking about Thanksgiving and Christmas for months... Continue Reading →
2nd day in Cincinatti…oh, boy…
"Melanie, I cannot understand the rapid progression that your lungs have taken in the past 3 months, or the past year. If you continue at this rate of progression before your next appointment in 3 months, you will be staring a double lung transplant in the face." So, those are the words that I heard... Continue Reading →
Day 1 in Cincinatti for the clinical trial.
Well, today has been an extremely LONG, and very difficult day. I spent my day doing all kinds of tests and getting all kinds of bad news. I wish I could say something positive about the day, but there isn't much positive to say about it. So, HERE I GO. BUT...first, I am going to... Continue Reading →