I heard this amazing song this week by this incredible young woman . Her name is Kerrie Roberts, and she is my favorite new Christian singer. She has this song called, "Keep Breathing". Here is the video. http://www.youtube.com/watch?v=RbDuM-f36Hs I almost feel like this song was WRITTEN for me for this time of my life! To... Continue Reading →
I really need these lungs to get here soon…
I am still waiting on the list. 🙂 I feel as if I have been on it for years, but it has only been a week. I feel so incredibly horrible, and I have been wondering if it was all in my head. Since I have gotten off of the trial drug I was on,... Continue Reading →
ON THE LIST!!!!
I am really excited right now b/c I am officially on the lung transplant list!! This is a real blessing for me. The funny thing is that when my husband asked me how I felt, rather than feeling scared or anxious or anything else, all that I could think of to feel was RELIEVED. I... Continue Reading →
2 weeks left!
Well, I have been off of the drug for over a month now. WOOOOOOOOOOW, am I feeling it! It is very difficult for me right now. I am feeling short of breath all the time, and breathing is something that I think about ALL day long...EVERY day. Even moreso than before, and I didn't think... Continue Reading →
Only 4 weeks to go!!
I have 4 weeks left to go until I can get officially on the lung transplant list!! I can't wait! All of the rest of my testing came back good, so I have nothing standing in my way. I have been off of my medication (sirolimus) for about 3 weeks now, and everything else is... Continue Reading →
Moving right along towards transplant…
I love having this blog. It is an easy way to inform my friends about the details of my life and not have to say the same story over and over. In addition, it helps me get things off of my chest...kind of like a diary. And I like that. But, I have to say... Continue Reading →
More testing…
Hey everyone! Well, the last week has been a rough one, but I have made it through. 🙂 Starting things off, I had the flu for 3 days, got better the next day, and then got a horrible cold and lost my voice. Moving right along...Tuesday and Wednesday were spent in Iowa City doing lung... Continue Reading →
Thanksgiving/More Lung Transplant Stuff
I hope everyone had an awesome Thanksgiving!!!!! I sure did. It was a great time. We had SO much fun with our friends and family. I just love holidays. We also took the kids to see Sesame Street Live last week. We all loved it. But, I think I did a bit too much during... Continue Reading →
My first meeting with the lung transplant team!
Hi everyone! I have to start updating more. Sorry for such sporadic posts!! 🙂 This week was my first set of appointments in Iowa City with the lung transplant team. I have to start by saying what an AMAZING team they are! I got along so well with all of them, and they are all... Continue Reading →
Getting listed for double lung transplant
Hi everyone! This is kind of the day that I have been dreading. I have to be honest. But, as you know, my time in Cincinnati Ohio is over, and I had my first appointment with my pulmonologist in Iowa City yesterday. My lung function is bottom of the barrel low right now. If my... Continue Reading →