I have to say that I am kind of sad right now that it is over! I have spent the past year with the amazing clinical staff in Cincinnati Ohio, and as of yesterday, my clinical trial is over. 😦 They have been so good to me, and have extended so much love and kindness... Continue Reading →
A beautiful gesture from a beautiful person…
So, this past weekend, my great friend had a yard sale for me. Her and her friends worked so hard almost the WHOLE holiday weekend to raise funds for my medical costs. They called me on Sunday to tell me of this amazing gesture that someone made that has completely affected my life. Apparently, this... Continue Reading →
Update on clinical trial
Wow, I am just realizing that I really haven’t written on my blog in a while!! Guess I have been busy!! I went to Cincinnati this week for my lung appointment. I did my lung tests and met with my doctor, and unfortunately, my lung function did decrease further from the last time I went. ... Continue Reading →
What has been going on with me??
Christmas was amazing as usual. I cannot love it any more than I do. The kids had so much fun! We all did. It was great watching Josiah open his gifts and playing with their new toys. Through having LAM I do have such an appreciation for the moments like that. Every holiday means the... Continue Reading →
Christmas is in 2 days!!
WOOHOO! I am like a little kid, I am so excited!! YAY!! So, we have been staying really busy getting things done for Christmas. I did go shopping a few times. And used a lot of hand sanitizer. We took the kids to Corralville Mall last week so they could do a few fun things,... Continue Reading →
Christmas is coming…and other misc stuff!!
So, this has been kind of a fun few weeks. Today I had a fun lunch with a good friend from the past, and finger painted with Jayden this afternoon. And then cleaned up after the finger painting for over an hour. 🙂 We have been slowly putting up Christmas decorations, which I LOVE. I... Continue Reading →
My Weekend / Visit with the doctor in Cincinnati
My trip to Cincinnati for ONCE was good news. After 2 years of BAD news, we finally got some good news. We started our trip by going on Friday night to Six Flags Great America with two of our best friends, the Kelleys and the Nichols. We took the kids and went to Great America... Continue Reading →
I love Fall/My next trip to Cincinnati
Fall is such a great time for me. It is so much easier to breathe in nice, crisp Fall weather. That is the first thing. The second thing is that I absolutely LOVE the Fall Season b/c of what comes right after...THE HOLIDAYS!!! Jay and I have been talking about Thanksgiving and Christmas for months... Continue Reading →
My husband.
Jay and I have been together since I was 16 years old. I knew after our first date when we watched "Beauty and the Beast" at his parents house that he was the guy for me. I knew that I would be marrying him. He has just been such an inspiration and such an amazing... Continue Reading →
So, am I on the drug or not???
I have been wondering that for the past month while I have been taking this drug. The main side-effect is canker sores. And, I should post a pic on here right now of my face, but I will spare you the disgustingness. My bottom lip is the HUGEST CANKER SORE I have ever seen. It... Continue Reading →