Update on clinical trial

Wow, I am just realizing that I really haven’t written on my blog in a while!!  Guess I have been busy!! I went to Cincinnati this week for my lung appointment.  I did my lung tests and met with my doctor, and unfortunately, my lung function did decrease further from the last time I went. ... Continue Reading →

What has been going on with me??

Christmas was amazing as usual.  I cannot love it any more than I do.  The kids had so much fun!  We all did.  It was great watching Josiah open his gifts and playing with their new toys.  Through having LAM I do have such an appreciation for the moments like that.  Every holiday means the... Continue Reading →

Christmas is in 2 days!!

WOOHOO!  I am like a little kid, I am so excited!!  YAY!!  So, we have been staying really busy getting things done for Christmas.  I did go shopping a few times.  And used a lot of hand sanitizer.  We took the kids to Corralville Mall last week so they could do a few fun things,... Continue Reading →

I love Fall/My next trip to Cincinnati

Fall is such a great time for me.  It is so much easier to breathe in nice, crisp Fall weather.  That is the first thing.  The second thing is that I absolutely LOVE the Fall Season b/c of what comes right after...THE HOLIDAYS!!!  Jay and I have been talking about Thanksgiving and Christmas for months... Continue Reading →

My husband.

Jay and I have been together since I was 16 years old.  I knew after our first date when we watched "Beauty and the Beast" at his parents house that he was the guy for me.  I knew that I would be marrying him. He has just been such an inspiration and such an amazing... Continue Reading →

So, am I on the drug or not???

I have been wondering that for the past month while I have been taking this drug.  The main side-effect is canker sores.  And, I should post a pic on here right now of my face, but I will spare you the disgustingness.  My bottom lip is the HUGEST CANKER SORE I have ever seen.  It... Continue Reading →

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