Well, I have been off of the drug for over a month now. WOOOOOOOOOOW, am I feeling it! It is very difficult for me right now. I am feeling short of breath all the time, and breathing is something that I think about ALL day long...EVERY day. Even moreso than before, and I didn't think... Continue Reading →
Only 4 weeks to go!!
I have 4 weeks left to go until I can get officially on the lung transplant list!! I can't wait! All of the rest of my testing came back good, so I have nothing standing in my way. I have been off of my medication (sirolimus) for about 3 weeks now, and everything else is... Continue Reading →
Moving right along towards transplant…
I love having this blog. It is an easy way to inform my friends about the details of my life and not have to say the same story over and over. In addition, it helps me get things off of my chest...kind of like a diary. And I like that. But, I have to say... Continue Reading →
More testing…
Hey everyone! Well, the last week has been a rough one, but I have made it through. 🙂 Starting things off, I had the flu for 3 days, got better the next day, and then got a horrible cold and lost my voice. Moving right along...Tuesday and Wednesday were spent in Iowa City doing lung... Continue Reading →
Thanksgiving/More Lung Transplant Stuff
I hope everyone had an awesome Thanksgiving!!!!! I sure did. It was a great time. We had SO much fun with our friends and family. I just love holidays. We also took the kids to see Sesame Street Live last week. We all loved it. But, I think I did a bit too much during... Continue Reading →
My first meeting with the lung transplant team!
Hi everyone! I have to start updating more. Sorry for such sporadic posts!! 🙂 This week was my first set of appointments in Iowa City with the lung transplant team. I have to start by saying what an AMAZING team they are! I got along so well with all of them, and they are all... Continue Reading →
Getting listed for double lung transplant
Hi everyone! This is kind of the day that I have been dreading. I have to be honest. But, as you know, my time in Cincinnati Ohio is over, and I had my first appointment with my pulmonologist in Iowa City yesterday. My lung function is bottom of the barrel low right now. If my... Continue Reading →
Melanie Putnam 