"Melanie, I cannot understand the rapid progression that your lungs have taken in the past 3 months, or the past year. If you continue at this rate of progression before your next appointment in 3 months, you will be staring a double lung transplant in the face." So, those are the words that I heard... Continue Reading →
Day 1 in Cincinatti for the clinical trial.
Well, today has been an extremely LONG, and very difficult day. I spent my day doing all kinds of tests and getting all kinds of bad news. I wish I could say something positive about the day, but there isn't much positive to say about it. So, HERE I GO. BUT...first, I am going to... Continue Reading →
Overwhelmed
So, I am totally overwhelmed and thankful and feeling blessed today. Yesterday, my great friends posted in the newspaper a really nice article about me and my situation. When I woke up in the morning and checked my email (which I do regularly bc I am a total addict), I had about 100 emails from... Continue Reading →
First blog entry
Thanks for taking the time to visit my blog. I am 26 years old, and was diagnosed with this disease last March at the age of 25. At that time I was 20 weeks pregnant with my second child. Because of the disease, I was forced to deliver Josiah at 29 weeks gestation. Josiah spent... Continue Reading →
Melanie Putnam 