Cincinnati Lung Appointment

Hi everyone!

Well, I just got home late last night from my appointment in Cincinnati this past week.  I have been there since Wednesday.   I have really been struggling in the past 2 months with my lung function.  I have been much more short of breath with every little movement in every area in the past few months.  MUCH MORE that I ever have experienced.  So, I knew going into my appointments that my results would not be good.  In addition, about a month ago, I started experiencing SEVERE swelling in my legs and ankles.  And I mean, bigger than when I was pregnant both times.  It apparently is a side effect of the drug that I am on in the clinical trial.  So, they did take me off of the drug for the past month.  I still have swelling, so we are waiting still on putting me back on the drug.  I can’t wait until this goes down, because I have not been able to wear shoes in over a month.  🙂

The results from my pulmonary function tests were not good.  These are the test where they have me spend hours blowing into machines measuring how much air I take in and blow out, etc.  They are the most accurate way to decide how someone’s lung function is.  Unfortunately, I did in fact declined the point where lung transplant should be considered as an option.  But, as I stated previously, Jay and I did expect this based on how I have been feeling.

Now, let me be honest with you.  I am not even 1% worried about this.  I know that a bigger, more powerful, and amazing Being is in control of all of this.  God will not fail me.  He never has and never will.  He is a miracle worker today just as in the times of the writings of the bible.  God has this all under control, and that is good with me.  So, I don’t want anyone else worrying about it!!  Please just pray and thank God for what He is doing in my life, and what He will continue to do in my life.  Worry is not from God, and so I choose not to have any.

The kids are so beautiful.  They have both been sick, so we were not able to take them with us this time.  Jay is on his way right now to go pick them up from their grandparents.  I can’t wait to see them and to spend a quiet day at home with them.

I want to close with Psalm 91 today.

Psalm 91

¹ He who dwells in the shelter of the Most High
will rest in the shadow of the Almighty. ^[a]

² I will say ^[b] of the LORD, “He is my refuge and my fortress,
my God, in whom I trust.”

³ Surely he will save you from the fowler’s snare
and from the deadly pestilence.

⁴ He will cover you with his feathers,
and under his wings you will find refuge;
his faithfulness will be your shield and rampart.

⁵ You will not fear the terror of night,
nor the arrow that flies by day,

⁶ nor the pestilence that stalks in the darkness,
nor the plague that destroys at midday.

⁷ A thousand may fall at your side,
ten thousand at your right hand,
but it will not come near you.

⁸ You will only observe with your eyes
and see the punishment of the wicked.

⁹ If you make the Most High your dwelling—
even the LORD, who is my refuge-

¹⁰ then no harm will befall you,
no disaster will come near your tent.

¹¹ For he will command his angels concerning you
to guard you in all your ways;

¹² they will lift you up in their hands,
so that you will not strike your foot against a stone.

¹³ You will tread upon the lion and the cobra;
you will trample the great lion and the serpent.

¹⁴ “Because he loves me,” says the LORD, “I will rescue him;
I will protect him, for he acknowledges my name.

¹⁵ He will call upon me, and I will answer him;
I will be with him in trouble,
I will deliver him and honor him.

¹⁶ With long life will I satisfy him
and show him my salvation.”

Blessings to all, and thank you for reading.  Have faith and do not worry.  You all mean the world to me.  XOXOXOXOXOXOXOX