I hope everyone had an awesome Thanksgiving!!!!! I sure did. It was a great time. We had SO much fun with our friends and family. I just love holidays. We also took the kids to see Sesame Street Live last week. We all loved it. But, I think I did a bit too much during the Thanksgiving holiday b/c today I woke up with the flu. So, that is not good. So, I am taking it easy today and focusing on getting better!!!
We also spent a lot of time decorating. Our great friends came over and decorated our house for Christmas with us. It was a bittersweet day for us b/c I LOVE decorating. It is one of my favorite parts of the holiday! But, unfortunately, my lungs just do not cooperate with me. So, I had to resort to sitting in my chair and pointing and bossing everyone else around. 🙂 Definitely not the same, but fortunately, Jay and our friends understand and do what they can to help us!!! For that, we are truly blessed.
My lungs are feeling pretty rough these days, I have to be honest. Some days are definitely better than others. But, I am really starting to feel the damage that is there. Even the LITTLEST thing now is getting to be so burdensome! This is so hard for me. Losing my independence. But, God is still sustaining me! I am still able to watch the boys every day by myself while Jay is working and am still able to do other smaller tasks. They are all just still more difficult for me. But, I am hanging in there.
On December 7th and 8th, I will be meeting up in Iowa City for lots of testing to evaluate my qualification for lung transplant. One of the tests will be on my liver b/c at my last appointment, we found a mass of some kind on my liver that has nothing to do with LAM. This could be something so small or who knows what it could be. In addition, my family and some friends will be meeting with the lung transplant team on that day to find out more details of what to expect before and after lung transplant. So, this is becoming very real to me, that is for sure.
I just still know and believe with all of my heart that God has a plan in all of this. We don’t know or understand how or why God works how He does.
“My thoughts are not your thoughts, nor are your ways My ways,’ says the Lord.
‘For as the heavens are higher than the earth, so are My ways higher than your ways,
And My thoughts than your thoughts.” Isaiah 55:8-9
So, I just keep trucking and knowing that God is in control, and I want nothing more than to submit fully to His ultimate plan for my life. So, I don’t worry about things.
In other news….CHRISTMAS IS COMING!!!!!!!!!!!!!!!!!!!!!!!!!!!
I love you Mel! You are an amazing person and you are in my prayers!!
Melanie,
You are truely an inspiration:)
Reading your blogs, are very touching. You and your family are going through so much, but yet you are so uplifting and full of Joy. You are very strong person and in your faith. Its so encouraging how you live by faith, and God’s promises. God is so much bigger than LAM, and he is doing wonderful things in you! Be strong, and know that I am deeply touched on your strength, endurance, and faith. God just shines thru you lady:)
You are the apple of Gods eye and are surrounded with Angels because you love and trust God.We truely believe with you for your healing.
The bigger the trial, the bigger the victory! You have so many people cheering you on to victory, and God is our Champion in all of this. 🙂 You are an inspiration to so many people. Love you so much!
You continue to amaze me, Melanie. I love your outlook on life in so many ways. You will continue to be in my prayers always. Remember, I am a phone call away if you need anything at any time!! Love ya, Kari xoxoxo
Melaine, God is able to do more than we can ever imagine. Keep the faith.
I am keeping you in my prayers Mel. ❤ you! Say hi to the boys for me 🙂 I wish I could meet you 😦 Stay strong 🙂