I am still waiting on the list. 🙂 I feel as if I have been on it for years, but it has only been a week. I feel so incredibly horrible, and I have been wondering if it was all in my head. Since I have gotten off of the trial drug I was on, I just keep feeling all of the time as if I am not getting enough oxygen. And like every little thing I am doing is SO incredibly difficult.
Well, Monday, I did go to an appointment in Iowa City. My lung capacity went from 26% the last time, to 18-19% now. THERE is why I am feeling so awful. I am declining. We expected that I would, but I am just really feeling the decline right now. The other HUGE significant thing that I experienced was a 6 minute walk test. All it is is just that…walking…for 6 minutes. A year ago, I did the 6 minute walk test with 8 liters of oxygen (which is a lot) and did okay. This time, I did the 6 minute walk test and had to turn up the oxygen to the highest of 15 liters, and I STILL didn’t stay saturated! Three times during the walk, I had to stop and rest. I was seeing white spots and felt like my body was going to burst into flames. Not to mention the fact that regardless of the fact that the hospital staff knows I am sick, it is still a hard thing for me to be 28 and in such horrible condition. Especially since I LOOK so normal. Take my tubes off and I am a normal 28 year old woman. It is hard sometimes.
Anyhow, that was very scary to hear how much I have declined, and so quickly. I really need these lungs quickly. Please keep praying for me! I know God is always on time, but in times like this, it is really difficult to be patient. I just want to live again!!!
Much love to everyone. Just wanted to update. xo
Melanie Putnam 
Melanie,
I think about you and your family daily and I pray that your lungs come SOON!!!!!!!! You have been so patient thru all of this and thru this all your faith has only gotten stronger. I pray God takes care of you soon so that you and your family can eventually move forward after all that you have been thru. Love you all!!
Rich and Karen
Melanie,
I am so sorry to hear that things aren’t working out exactly as planned. My family and I pray for you every night at dinner, and before we go to sleep. Although I’ve never met you, I feel like I can really relate to you. Stay strong Melanie. I know God has a very special plan, for a very special someone.
XoXo- Hannah ❤